One of the world’s largest DNA collections in private hands, ancestry testing company 23AndMe with over 14 million genotypes, seems headed for a chaotic ownership change after CEO Anne Wojcicki warned of incoming bankruptcy and the entire board quit.
While 23andMe’s genetic tests can sometimes provide useful history for some genetically-linked medical conditions, the vast majority of people who willingly sent their saliva to the company were merely seeking to get an analysis of their ancestors heritage for curiosity or entertainment.
The company’s bankruptcy is perhaps not a huge surprise as there is no repeat model for DNA testing – once it’s done it’s done – and the company may have exhausted the supply of willing testers. But the DNA bank’s exclusion from HIPAA, the lack of state laws in most states outside of California (which has a genetic privacy law) and the company’s definition of the DNA in its possession as a salable asset, make the internal crisis a privacy disaster for millions of people with large and measurable risks.
How can you protect yourself if you went for the DNA testing game?
